haveyoutriedyogapodcast Blog, Episodes

Episode 9: Z for Zebra OUT NOW!

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Episode 9: Z for Zebra

Listen at

Libsyn – Apple Podcasts – Spotify –  YouTube

Emma and Georgia explore the zebra life in an episode about Ehlers Danlos Syndrome. Wait – why are we talking about zoo animals? Is this not a chronic pain podcast? Tune in to find out and and hear from our guest this month Jess Cochran, a ‘sit down’ comedian and advocate with Ehlers Danlos.

Find Jess Cochran at @stripes_spoons_and_hopes and @jessie_fate.

Thanks to Adele, Rebecca, Brianna and @jackiennicole for their listener submissions. More shownotes at our website.

Show Notes

Ehlers Danlos Society – https://www.ehlers-danlos.com/what-is-eds/

NHS Information – https://www.nhs.uk/conditions/ehlers-danlos-syndromes/

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haveyoutriedyogapodcast Blog, Episodes

Episode 8: The V Word OUT NOW!

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Emma and Georgia explore the pain conditions of vulvodynia and vaginismus with the help from listeners Jaime @_itoldyouiwassick_, Caitlin Hall, Fionn and Alex. Thank you to these wonderful listeners for their eloquent and fierce stories!

Our incredible art this month is from Stacey Lehane @goddammitstacey 

Listen at

Libsyn – Apple Podcasts – Spotify –  YouTube

Recommended websites:

Credits
HYTY theme music by Callum Kennedy
HYTY graphics and logo by Kara West
Transition music by Bensounds
Outro, Make Me Feel by Janelle Monae

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haveyoutriedyogapodcast Blog, Episodes

Episode 7: Stay In School, Kids OUT NOW!

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We’re proud to present Episode 7: Stay in School, Kids!

In this episode, Emma and Georgia are joined by guest Kate Berger from Cing Education to discuss the positive and negative experiences of education for spoonies.

Listen at
Libsyn – Apple Podcasts – Spotify –  YouTube

 

Credits
HYTY theme music by Callum Kennedy
HYTY graphics and logo by Kara West
Transition music by Bensounds
Outro, Another Brick in the Wall Part 2 by Pink Floyd

From episode – Possible educational adjustments

  • Mode of assessment presentation/submission: online, email, video, PowerPoint, digital vs paper, or audio/video record speech instead of in class
  • Teacher aide or carer assists in scribing notes
  • Teacher provides work for pre-teaching ahead of time, extra notes for sick student
  • Teacher provides graphic organiser and/or visual cues to help organise writing
  • Typing instead of handwriting (dyspraxia and other hand issues)
  • Hit or miss – dragon dictation or other dictation apps
  • Other online study tools – Twinkl, study.com, sparknotes, schmoop
  • Levelled reader books, No Fear Shakespeare
  • Student choice, topic of interest to reengage disengaged students
  • Worksheets – students select answers from word bank rather than write whole words
  • Don’t interrupt students when reading aloud and mispronouncing words, wait until finished (confidence building)
  • Extra wait time for processing – don’t expect answers straight away
  • Extensions and extra time for homework/assessments
  • ‘Brain breaks’ during a lesson when student is tired or overstimulated
  • Pre-decided system of showing teacher when a break, rest or extra help is needed without drawing attention to themselves

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haveyoutriedyogapodcast Blog, Episodes

Episode 6: A Painful History OUT NOW!

episode 6

Welcome to the first episode of 2018! WE’RE SO EXCITED!

We explore the breadth of the history of pain – including pain theories and strange treatments – from ancient times until the 20th century. 

Featuring our new 2018 HYTY theme music by the amazing Callum Kennedy!

Listen at
Libsyn – Apple Podcasts – YouTube

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Descarte and La Forge: iconic pain illustration

Show Notes

Research References

Author Unknown. (2014). Eight facts on the history of pain management. Retrieved from https://blog.oup.com/2014/09/facts-history-of-pain-management-list/

Behan, Richard J. (1914). Pain: its origin, conduction, perception and diagnostic significance. Augustus Long Health Sciences Library. Retrieved from https://wellcomelibrary.org/item/b21228760#?c=0&m=0&s=0&cv=56&z=-1.1408%2C0%2C3.2816%2C1.6604

Burke, J. (2011). The History of Medicine as the History of Pain. History Today, 61 (4). Retrieved from http://www.historytoday.com/joanna-bourke/history-medicine-history-pain

Burke, J. (2014). How to Talk About Pain. Retrieved from https://www.nytimes.com/2014/07/13/opinion/sunday/how-to-talk-about-pain.html?ref=opinion

Dvorsky, G. (2016). A Brief History Of Painkillers (And Why They Work). Retrieved from https://www.gizmodo.com.au/2016/03/a-brief-history-of-painkillers-and-why-they-work/

Funnell, A. (2014). The history of pain, with UK historian Joanna Bourke. Retrieved from www.abc.net.au/radionational/programs/sundayextra/the-history-of-pain/5614136

Kang, L & Nate Pederson. (2017). Quackery: A Brief History of the Worst Ways to Cure Everything. Workman Publishing Company.

Lallanilla, M. 2005. A Brief History of Pain. Retrieved from http://abcnews.go.com/Health/PainManagement/story?id=731553

Moayedi, M., & Davis, K. D. (2013). Theories of pain: from specificity to gate control. Journal of neurophysiology, 109(1), 5-12.

Sound Bites (within fair use):

Queens of the Stone Age – No One Knows (Stone Age)
Walk Like An Egyptian – The Bangles (Ancient Egypt)
Opening Credits – Caligula (Ancient Greece and Ancient Rome)
Monty Python and the Holy Grail (Middle Ages)
Le Roi A Fait Battre Tambour  – La Poeme Harmonique (17th Century)
Victoria (TV Series) Title Sequence (Victorian Age)
Sing, Sing, Sing – Benny Goodman (1920s)
Boogie Woogie Bugle Boy – The Andrews Sisters (1940s)
Stayin’ Alive – The Bee Gees (1970s)
History Repeating – The Propellerheads feat. Shirley Bassey (Outro)
Transition Music – Ben Sounds

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haveyoutriedyogapodcast Blog, Episodes

Episode 5: Around The World In 80 Spoons OUT NOW!

We’re joined by guest spoonies Brianna Bell and  Alex Roberts to discuss travel, tourism and vacations for people with disabilities, chronic illnesses and pain!

Episode 5: Around The World In 80 Spoons!

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Listen to and download this episode on Apple Podcasts or Libsyn.

Don’t forget to rate, review and share HYTY! 🙂

Show Notes

Guests

Brianna Bell: EDS spoonie. She’s a law student, and you can find more about her and her assistance dog Kirby on facebook here!

Alex Roberts: MS Spoonie. She’s a tourism student working to advocate for accessibility and inclusivity!

Listener Submissions

Thanks to listener and artist Ciara (@mychronicpaindiary) for her submission this episode!

Credits

Theme Music by Callum Kennedy
Graphics by Kara West
Outro music I’ve Been Everywhere, Man by The Beggars

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