Episode 17: Heads Will Roll

 

 

Migraines – they aren’t just headaches! We’re joined by guest Barbara Wood to discuss the what, why and impact of migraines in our latest episode, Episode 17: Heads Will Roll.

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Next month will feature a special interview with Barbara about her migraine journey.

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Explore our official Pinterest board!

Theme music by Callum Kennedy
Interlude music by Bensounds from Bensounds.com
Artwork by Kara West
Outro – Heads Will Roll by The Yeah Yeah Yeahs

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Episode 16: Say Hello with Carly Findlay

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In this episode, Georgia and Emma sit down with Australian appearance activist Carly Findlay to discuss her new memoir Say Hello. Carly lives with a rare skin condition, Ichthyosis, and what she faces every day, and what she has to live with, will have you cheering for her and her courage and irrepressible spirit. Join us as we discuss activism, ableism and representation with Carly!

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Show Notes

Say Hello by Carly Findlay

Carly Findlay’s website

Carly’s Wonder articles 1, 2

Theme music by Callum Kennedy
Interlude music by Bensounds from Bensounds.com
Artwork by Kara West
Outro – Hello, Goodbye by The Beatles

Mini Yoga: Anti-New Years Resolutions for Spoonies!

The ladies share their anti-new years resolutions for spoonies, as well as what they’ve been grateful for in 2018 in this mini episode.

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Explore unsolicited medical advice in our official Pinterest board!

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Show Notes
Theme music by Callum Kennedy
Interlude music by Bensounds from Bensounds.com
Artwork by Kara West
Outro – thank u, next by Ariana Grande

Episode 14: Unsolicited Medical Advice 2.0 OUT NOW!

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In this episode, Georgia and Emma reveal unsolicited medical advice they’ve been given or heard of! We also hear from listeners about the worst advice they’ve ever received. Thanks to Jayne, Adora, Melanie, Kelly, Barbara, @beccabastianlee, @explodingplasticshop, @goddammitstacey, @pineneedle_path for their listener submissions.

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Explore unsolicited medical advice in our official Pinterest board!

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Show Notes
Theme music by Callum Kennedy
Interlude music by Bensounds from Bensounds.com
Artwork by Kara West
Outro – Only Happy When It Rains by Garbage

Episode 13: The Final Straw OUT NOW!

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We look at the straw ban and how it impacts people with disabilities. We are joined by guest Alice Wong, founder of Disability Visibility Project and podcast, for a interview about her opinions on the straw ban.

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Explore the straw ban and resources about it in our official Pinterest board!

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Show Notes

Graphic we mentioned by Sarah Packwood:

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Credits
Theme Music by Callum Kennedy
Logo by Kara West
Outtro – Europe, ‘The Final Countdown’

Episode 12: Werk OUT NOW!

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Episode 12: Werk

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We are back! After a short hiatus Emma and Georgia discuss the something that takes up most of each day for many people – Work! What options does a person with a disability have in the work place? What are some alternative options for work and what are some assistive devices one could consider getting?

Explore work/job resources at our official Pinterest board!

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Show Notes

Bupa – Working with Pain

Everyday Health – Managing Chronic Pain at Work

Theme Music by Callum Kennedy
Logo by Kara West
Outtro – Rihanna, ‘Werk’

Episode 11: Munchausen by Internet OUT NOW!

 

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You might know the names figures such as Belle Gibson, Lacey Spears and Gyspy Rose. In this episode, Emma and Georgia discuss the realities of ‘Munchausen by Internet’ as a psychological issue, as well as its impact on the chronic pain community, and the differences between Munchausen Syndrome, By Proxy and By Internet. We are also joined by our special guest The Trains, which keep interrupting us, and we spoil the movie ‘Everything, Everything’. Listen now!

Show Notes

The Lying Disease by Cienna Madrid

Munchausen by internet: What drives people to fake an illness online?

Belle Gibson admits she “never had brain cancer” | 60 Minutes Australia

Cancer fraud Belle Gibson: How the wellness industry became the other casualty by Beau Donnelly and Nick Toscano

Outro: Little Lies by Fleetwood Mac

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Episode 10: The Pain Agenda OUT NOW!

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In our tenth episode we discuss a diverse range of pain conditions and how gender identity can impact chronic pain.

We’re joined by two hilarious and lovely guests, Fionn Volkov and Lionel Scicluna, with Fionn discussing their experiences as a trans agender person with pelvic pain, hypermobility, ASD and mental health issues; and Lionel discussing his experiences as a cis-gendered male with Chronic Vestibular Migraine and Acoustic Neuroma.

You can find Fionn at @elfinvale.

Lionel can be found at Malieta Honey.

Show Notes

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Episode 9: Z for Zebra OUT NOW!

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Episode 9: Z for Zebra

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Emma and Georgia explore the zebra life in an episode about Ehlers Danlos Syndrome. Wait – why are we talking about zoo animals? Is this not a chronic pain podcast? Tune in to find out and and hear from our guest this month Jess Cochran, a ‘sit down’ comedian and advocate with Ehlers Danlos.

Find Jess Cochran at @stripes_spoons_and_hopes and @jessie_fate.

Thanks to Adele, Rebecca, Brianna and @jackiennicole for their listener submissions. More shownotes at our website.

Show Notes

Ehlers Danlos Society – https://www.ehlers-danlos.com/what-is-eds/

NHS Information – https://www.nhs.uk/conditions/ehlers-danlos-syndromes/

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Episode 8: The V Word OUT NOW!

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Emma and Georgia explore the pain conditions of vulvodynia and vaginismus with the help from listeners Jaime @_itoldyouiwassick_, Caitlin Hall, Fionn and Alex. Thank you to these wonderful listeners for their eloquent and fierce stories!

Our incredible art this month is from Stacey Lehane @goddammitstacey 

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Recommended websites:

Credits
HYTY theme music by Callum Kennedy
HYTY graphics and logo by Kara West
Transition music by Bensounds
Outro, Make Me Feel by Janelle Monae

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